We had the first assessors here last Wednesday (a speech pathologist and child development specialist) and two more here today (an occupational therapist and a psychologist). Thus far, the verdict seems to be that Henry has low muscle tone, hence slack muscles -- causing language and motor skill delay. A team of therapists will be visiting us weekly to help him out. The psychologist said that he does not exhibit the classic signs of autism, but does have a couple "funky" traits, e.g. not responding to his name when he is absorbed in something, some indications of "low registration" or insensitivity (high pain threshhold, omnivorous eating habits, etc.).
They assured us that physical therapy would help with the muscle tone, and that he obviously likes people and wants interaction but doesn't know how to go about it yet (due to his communication delay). Jon and I have been reading books on development and communcation styles, and have made a concerted effort to engage him as best we can. He's not the kind of child who will initiate play or conversation -- unlike my niece, Maggie, who at 18 months would run up and say "Come play with me!"
I realize that we were too passive with Henry and allowed him to play by himself a lot, because that is what he likes to do -- but it doesn't make for much advanced in social skills. We see a lot of improvement in only a week of trying some different methods. I feel like I had a few "Eureka!" moments this week, as though I suddenly understand him better and now know why I felt my interactions with him were a bit off.
So -- where does this all lead? We will see our pediatrician in a couple weeks to discuss all of this. Henry will start therapy soon. I feel better than I did a week ago, when I worried that he had autism or worse. The assessors seem to think that his delays are temporary and can be overcome with work.
It's a bit confusing, making sense of the jumble of terms and concepts surrounding behavior, temperament, development, etc. Once again, I think about where we were 30 or 40 years ago, when there was hardly any early childhood education or intervention, when there were few tests or indicators of any difficulties beyond the most severe. Undoubtedly progress has been made, knowledge gained -- but it is also possible that things that would once go unremarked or thought of as just quirks (e.g. Henry's self-absorption and "insensitivity") are now thought of as problematic because they fall outside the norm.
And that there is really nothing wrong with these traits at all.
Ever notice that every single list of milestones will have a caveat attached, such as "Keep in mind that every child develops at their own pace, and that these are just general guidelines"...?
Ever notice that, though you may understand that caveat intellectually, it is almost impossible not to worry when your child doesn't achieve said milestones?
Maybe we have too much statistical data about what constitutes "normal." Maybe we, as a culture, are losing the ability to appreciate the odd, the quirky, the "black sheep" of the family.
Of course, we wouldn't want to blithely dismiss any assessment of Henry if it means we will deny him the opportunity to improve his skills.
But I don't want to lose sight of the fact that Henry is Henry: a lovely, warm, charming, quirky little boy who is perfect in our eyes.
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